Day2 Genomics Track Session V eapmmilan2018
27th November – 15:45 – 17:00 – Session V
Pillars to Realize MEGA
This ‘pillars’ session will discuss the following elements in respect of MEGA:
Central Coordination and Expert Groups: A central body will be developed in response to cross-stakeholder advice.
Genome-phenome Database: The information technology infrastructure is fundamental. Given the sensitive nature of information held, ensuring maximal security while facilitating access is essential. One of the key early engagement and advisory functions will be to assess use of cloud, such as the European Science Cloud, or a physical data centre, as well as other approaches to ensure maximal security while facilitating distributed approved access.
National Infrastructure: Much of the required infrastructure will be in participating Member States. Further investment in these will be supported as well as ensuring proposals are capable of meeting standardised requirements for the programme.
Engagement: Ensuring participants and individual engagement and decision making is central to MEGA. A collaborative public-private-third sector approach is required to ensure success.
Executive Director, European Alliance for Personalised Medicine
Clinical and Scientific
Professor of Medical Genetics at the Faculty of Medicine at the University of Trieste (Italy)